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Research

Michael Vitale, MD, MPH ($10,000)
David Roye, MD; Joshua Hyman, MD; Frances Lee, PhD; Debra Krasinski, PhD,PT
“Assessing Outcomes in Children with Neuromuscular Disease”

Publications submitted :

1. Development and initial validation of the neuromuscular disease caregiver impact questionnaire (NEUROCIQ) submitted to Journal of Pediatric Orthopaedics.

2. Quantifying and Examining the Impact of Personal Time in Parents of Children with Neuromuscular Disease submitted to Journal of Pediatric Orthopaedics B.

Presentations:

1. Quantifying and Examining the Impact of Personal Time in Parents of Children with Neuromuscular Disease

a. Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Atlanta, GA, September 17-20th, 2008 (Oral Presentation)

b. Annual Meeting of The American Orthopaedic Association (AOA), June 10-13, 2009, in Bonita Springs, Florida. (Poster Presentation)

c. Annual Meeting of European Pediatric Orthopaedic Society (EPOS), Lisboa, Portugal, April 1st -4th, 2009 (Oral Presentation)

d. Annual Meeting of the Pediatric Orthopaedic Society of North America (POSNA), April 30 – May 2, 2009, in Boston, Massachusetts.  (e-poster presentation)

e. American Academy of Pediatrics (AAP) National Conference and Exhibition, Washington, DC, October 17 – 20, 2009. (Oral Presentation)

2. Development And Initial Validation Of The Neuromuscular Disease Caregiver-Administered Rapid Evaluation (Md-Care). AAP National Conference & Exhibition (NCE), Boston, Massachusetts, October 11-14, 2008 (Oral Presentation)

3. A Rapid Comprehensive Quality of Life Assessment in Children with Neuromuscular Disease Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM), Atlanta, GA, September 17-20th, 2008 (Poster Presentation).

4. Development and initial validation of the neuromuscular disease caregiver impact questionnaire(NEUROCIQ) Annual Meeting of EPOS Lisboa, Portugal, April 1st -4th. (Poster Presentation)

See Also

Annual Meeting

Annual Meeting Location May 16-19, 2012 in Denver, CO

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